Science shows that approximately 1 in 2,000 people are 𝐛𝐨𝐫𝐧 with a ʀᴀʀᴇ ɢᴇɴᴇᴛɪᴄ ᴅɪsᴏʀᴅᴇʀ. This fact brings to light the incredible diversity and complexity of human biology.
This story proves once again that the support of our loved ones is really important. Courtney and Gavin, parents with a special daughter, share their inspiring experience with many people on their social networks about what it’s like to have a 𝑏𝑎𝑏𝑦 with a ᴄʟᴇꜰᴛ ʟɪᴘ to help other families who are going through the same thing.
Courtney and Gavin Gardner welcome their daughter, Sutton, who was 𝐛𝐨𝐫𝐧 with a ᴄʟᴇꜰᴛ ʟɪᴘ. The mother is concerned about the health of her second 𝘤𝘩𝘪𝘭𝘥 and spends the entire night after Sutton’s 𝐛𝐢𝐫𝐭𝐡 wondering and praying that everything will be okay. In the 20th week of her pregnancy, the doctor does an ᴜʟᴛʀᴀsᴏᴜɴᴅ, which reveals that the 𝑏𝑎𝑏𝑦 has the so-called ʀᴀʙʙɪᴛ ʟɪᴘ. When Gardner receives the news, he is in for a real sʜᴏᴄᴋ.
“The last part they did was the ᴜʟᴛʀᴀsᴏᴜɴᴅ on her face, and then the specialist said, ‘Oh, she really has a ᴄʟᴇꜰᴛ ʟɪᴘ.’ This could happen,” says Courtney.
Cʟᴇꜰᴛ ʟɪᴘ and ᴘᴀʟᴀᴛᴇ are very ʀᴀʀᴇ ᴄᴏɴᴅɪᴛɪᴏɴs affecting 1 in 1,600 babies and occur when a 𝑏𝑎𝑏𝑦’s lips or mouth do not develop normally during pregnancy. This can be ᴄᴀᴜsᴇᴅ by various factors, such as food or ᴅʀᴜɢs that the mother took, but it can also be a type of ɢᴇɴᴇᴛɪᴄ ᴘʀᴇᴅɪsᴘᴏsɪᴛɪᴏɴ.
After the Gardners welcomed their first son, they regretted not doing a special 𝑏𝑎𝑏𝑦 photo shoot with him. When Courtney became pregnant again, she knew she wanted to capture every moment of her new𝐛𝐨𝐫𝐧 daughter. Photographer Shannon Morton takes the photos, which the parents later share on social networks. One of them quickly gained popularity and collected over 10,000 likes within hours. Over the next few days, the number of likes increased to an impressive 750,000.
Courtney says all the comments about her daughter have been kind and encouraging, with most people saying how beautiful she is. The post inspired many people to share their stories and photos. The Gardners are motivated to create their own Facebook page, My Cleft Cutie, to help other parents who are going through a similar ᴅɪᴀɢɴᴏsɪs with their 𝘤𝘩𝘪𝘭𝘥ren. “My little princess was 𝐛𝐨𝐫𝐧 with a ʙɪʟᴀᴛᴇʀᴀʟ ᴄʟᴇꜰᴛ. Fortunately, her palate was intact. Daddy and I assure her every day that she is the most beautiful girl in the world and her personality is amazing,” commented a mother under the Facebook post.
The parents are worried about their daughter’s health but also very grateful to the hospital, which is helping them immensely during this incredible journey. Sutton’s ᴄʟᴇꜰᴛ ᴘᴀʟᴀᴛᴇ made bottle feeding a real challenge, and she spent the first 18 days of her life in the ɴᴇᴏɴᴀᴛᴀʟ ɪɴᴛᴇɴsɪᴠᴇ ᴄᴀʀᴇ ᴜɴɪᴛ. The little girl is expected to undergo the first of a series of sᴜʀɢᴇʀɪᴇs in just a matter of days, with the next one when she turns one. Specialists are adamant that intensive work with a speech therapist will be necessary.
“Although things are scary and may seem bleak in this initial period for little Sutton, this is actually a ᴄᴏɴᴅɪᴛɪᴏɴ that is 100% ᴛʀᴇᴀᴛᴀʙʟᴇ ᴀɴᴅ ᴍᴀɴᴀɢᴇᴀʙʟᴇ,” says Courtney. Her parents describe her as very social, lively, smiling, and truly happy, especially when her older brother is by her side. And they hope that one day this story will be just a memory of the past.
